ALS Ice Bucket Challenge Progress

 

Help & Hope Symposium 2020

Date:
Saturday, April 4, 2020
Time:
9:00 AM - 3:30 PM
Location:
The Presidential
2910 DeKalb Pike
Norristown, PA 19401

 

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Join Us for the Latest Information on

ALS Research & Care

 

Saturday, April 4, 2020

9:00 am to 3:30 pm

at

The Presidential

2910 DeKalb Pike

Norristown, PA 19401

(just minutes from King of Prussia)

 

Registration by March 25th is required to attend this event.

 

ALS Patients and one guest are complimentary.

I am unable to attend but would like to make a donation.

Contact Carla Patton with questions at 215-664-4145 or Carla@alsphiladelphia.org.

 

Help & Hope Symposium is a day filled with the latest information on ALS Research and Care. It includes distinguished speaker presentations, an Ask the Experts Panel, and a Tools & Tech Exhibit Hall that you can visit throughout the day. Learn from experts in the field, experience first-hand how to use equipment, and find out about resources for ALS families. Breakfast and lunch are included.

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Guest Speakers

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Zachary Simmons, MD

Professor of Neurology and Humanities, Penn State University

Director, Penn State Hershey ALS Clinic and Research Center

 

Platform Trial: An Exciting and Innovative Design for ALS Clinic Trials

 
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Bryan J. Traynor, MD, PhD

Senior Investigator
Chief, Neuromuscular Diseases Research Section

Laboratory of Neurogenetics, NIA, NIH


Topic: Adventures in the Genetics of ALS

Meet the Experts Panel Discussion

Ask your most pressing questions.

 

  • Alisa Brownlee, ATP, CAPS  Certified Assistive Technology Specialist
  • Gabriela C. Charles, OTR-L Occupational Therapist
  • Judith Guarnieri, RN, CRNP  Certified Registered Nurse Practitioner
  • Gail Houseman, RN, CNS-BC Regional Nurse Coordinator
  • Daniel Kelly, MA, CCC-SLP   Speech-Language Pathologist
  • Brittani Longenecker, RRT Registered Respiratory Therapist
  • Joseph A. McCoy, PT, MSPT, NCS Physical Therapist
  • Jayne Etskovitz, MSW  Social Worker

Special Presentations

Alisa Brownlee, ATP, CAPS

Gidgets and Gadgets for People with ALS, featuring innovations in Assistive Technology to help patients communicate.

 

Christine Moretti

Perspective from a Person with ALS

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