Your gift provides funding for the vital progress we embrace…
Progress in Research – Because research is critical to finding a cure, I encourage everyone who can, to participate in research studies like I do. This includes The National ALS Registry, the largest ALS research project ever created. It helps researchers learn who gets ALS and connects people to clinical trials. I also provide a patient’s perspective as a member of the Department of Defense’s Consumer Review Panel (CDMRP) which investigates groundbreaking ALS research. Every year, The ALS Association funds millions of dollars in research, in 150 laboratories around the globe because of your contributions.
Progress in Care – I look at the Chapter’s website and see it now supports EIGHT comprehensive ALS Treatment Centers! Any time Loretta and I need help, the Chapter is just a phone call or email away. At our South Jersey Support Group, both our social worker and the participants in our group offer such valuable information and insight. My personal fight is fueled by the courage of ALS families I encounter. This disease can be very lonely. I see a need so great and I see The ALS Association care services team filling that need.
Progress in Advocacy – This year, Loretta and I are the proud recipients of the Chapter’s Flame of Hope Award for Advocacy. Advocates like us use our voices to request funding from legislators in both Washington, DC, and in our home state of New Jersey. Sharing our stories gives us empowerment and hope. We have worked
to secure millions of dollars for critical care and research, advocating on behalf of the entire ALS community. I believe ALS is not incurable — just underfunded.