September 29-30, 2021
More information on this virtual event coming soon.
Join Us for the Latest Information on ALS Research & Care
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The 2020 Help & Hope Symposium was an exciting VIRTUAL ONLINE experience for everyone affected by ALS. Presentations from nationally recognized experts in ALS care and research are available here on our website and on our Facebook and YouTube pages for you to view and share.
If you have questions for any of our presenters, please email steve@alsphiladelphia.org.
Highlights from Our 2020 Event
INTRODUCTION FROM STEVE SPAULDING
DIRECTOR OF CARE SERVICES
MEET THE EXPERTS PANEL INTRODUCTION
MEET THE EXPERTS PANEL PART I
MEET THE EXPERTS PANEL PART II
MEET THE EXPERTS PANEL PART III
MEET THE EXPERTS PANEL PART IV
PERSPECTIVE FROM A PERSON WITH ALS
HOW PEOPLE WITH ALS CAN CALL FOR HELP
STAY CONNECTED DURING COVID-19 PANDEMIC
AUGMENTATIVE AND ASSISTIVE COMMUNICATION
WHEELCHAIR OPTIONS FOR PEOPLE WITH ALS
VOICE ACTIVATION FOR CELL PHONES
HOME MODIFICATIONS FOR PEOPLE WITH ALS
VOICE AND MESSAGE BANKING OPTIONS
ADVENTURES IN THE GENETICS OF ALS
BRYAN J. TRAYNOR, MD, PhD
CLINICAL TRIALS
JINSY A. ANDREWS, MD, MSc
EXCITING, INNOVATIVE DESIGN: ALS CLINIC TRIALS
ZACHARY SIMMONS, MD
RECAPPING HELP & HOPE WITH ELLYN PHILLIPS
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MEET THE EXPERTS PANEL DISCUSSIONS
- Alisa Brownlee, ATP, CAPS Certified Assistive Technology Specialist
- Anne Cooney, MSW, LSW Social Worker
- Jayne Etskovitz, MSW, LSW Social Worker
- Kristofer Feeko, DO Physiatrist
- Carol Freed, RD Dietician
- Judith Guarnieri, RN, CRNP Certified Registered Nurse Practitioner
- Christopher Hague Medical Assistant
- Gail Houseman, RN, CNS-BC Regional Nurse Coordinator
- Hristelina Ilieva, MD, PhD Clinical Director
- Daniel Kelly, MA, CCC-SLP Speech-Language Pathologist
- Margaret Kreher, MD Palliative Care
- Brittani Longenecker, RRT Registered Respiratory Therapist
- Laura Oakley, Bsc Clinical Research Coordinator
- Piera Pasinelli, PhD Center Director
Christine Moretti
Perspective from a Person with ALS
Alisa Brownlee, ATP, CAPS
Gidgets and Gadgets for People with ALS, featuring innovations in Assistive Technology to help patients communicate and assist with daily living.
DISTINGUISHED ALS RESEARCHERS
Bryan J. Traynor, MD, PhD
Senior Investigator Chief, Neuromuscular Diseases Research Section
Laboratory of Neurogenetics, NIA, NIH
Topic: Adventures in the Genetics of ALS
Jinsy A. Andrews, MD, MSc Sr. Director, Clinical Research and Development Head of Neuromuscular Therapeutics Columbia University
Topic: Clinical Trials
Zachary Simmons, MD
Professor of Neurology and Humanities, Penn State University
Director, Penn State Hershey ALS Clinic and Research Center
Platform Trial: An Exciting and Innovative Design for ALS Clinic Trials
Thank You to Our Sponsors
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