ALS Ice Bucket Challenge Progress

 
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Join Us Online for the Latest Information on
ALS Research & Care

The 2020 Help & Hope Symposium is an exciting VIRTUAL ONLINE experience for everyone affected by ALS. Presentations from nationally recognized experts in ALS care and research are available here on our website and on our Facebook and YouTube pages for you to view and share.

 
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If you have questions for any of our presenters, please email steve@alsphiladelphia.org.

Please give us your feedback! All presenters, both care staff and researchers, want to know what you think. Click here to take a short survey that will help improve future Help & Hope Symposiums and provide valuable content for the ALS community.

MEET THE EXPERTS PANEL DISCUSSIONS


  • Alisa Brownlee, ATP, CAPS  Certified Assistive Technology Specialist
  • Anne Cooney, MSW, LSW  Social Worker
  • Jayne Etskovitz, MSW, LSW  Social Worker
  • Kristofer Feeko, DO  Physiatrist
  • Carol Freed, RD  Dietician
  • Judith Guarnieri, RN, CRNP  Certified Registered Nurse Practitioner
  • Christopher Hague  Medical Assistant
  • Gail Houseman, RN, CNS-BC  Regional Nurse Coordinator
  • Hristelina Ilieva, MD, PhD  Clinical Director
  • Daniel Kelly, MA, CCC-SLP  Speech-Language Pathologist
  • Margaret Kreher, MD  Palliative Care
  • Brittani Longenecker, RRT  Registered Respiratory Therapist
  • Laura Oakley, Bsc  Clinical Research Coordinator
  • Piera Pasinelli, PhD  Center Director

SPECIAL PRESENTATIONS

Christine Moretti

Perspective from a Person with ALS

 

Alisa Brownlee, ATP, CAPS

Gidgets and Gadgets for People with ALS, featuring innovations in Assistive Technology to help patients communicate and assist with daily living.

DISTINGUISHED ALS RESEARCHERS

 
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Bryan J. Traynor, MD, PhD

Senior Investigator
Chief, Neuromuscular Diseases Research Section

Laboratory of Neurogenetics, NIA, NIH


Topic: Adventures in the Genetics of ALS

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Jinsy A. Andrews, MD, MSc
Sr. Director, Clinical Research and Development
Head of Neuromuscular Therapeutics
Columbia University

Topic: Clinical Trials

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Zachary Simmons, MD

Professor of Neurology and Humanities, Penn State University

Director, Penn State Hershey ALS Clinic and Research Center

 

Platform Trial: An Exciting and Innovative Design for ALS Clinic Trials

 

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